{"id":33997,"date":"2024-10-16T13:53:45","date_gmt":"2024-10-16T11:53:45","guid":{"rendered":"https:\/\/neuronup.com\/?p=33997"},"modified":"2026-10-22T18:29:51","modified_gmt":"2026-10-22T16:29:51","slug":"les-maladies-rares-en-donnees","status":"publish","type":"post","link":"https:\/\/neuronup.com\/fr\/maladies-rares\/les-maladies-rares-en-donnees\/","title":{"rendered":"Les maladies rares en donn\u00e9es : caract\u00e9ristiques et diagnostic"},"content":{"rendered":"\n<p class=\"has-xl-font-size wp-block-paragraph\">Dans cet article, nous expliquons <strong>ce qu&rsquo;est une maladie rare<\/strong>, en mettant en avant<strong> sa d\u00e9finition, son impact mondial et les difficult\u00e9s<\/strong> auxquelles sont confront\u00e9s les patients. Nous d\u00e9taillons des statistiques sur sa pr\u00e9valence dans diff\u00e9rentes r\u00e9gions du monde et pr\u00e9sentons les principales caract\u00e9ristiques de ces maladies, telles que le diagnostic tardif, la douleur chronique et le handicap.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img decoding=\"async\" width=\"704\" height=\"1477\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/infografia-enfermedades-raras.webp\" alt=\"Infographie avec des ic\u00f4nes m\u00e9dicales illustrant la d\u00e9finition, les statistiques et le diagnostic des maladies rares.\" class=\"wp-image-34000\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/infografia-enfermedades-raras-143x300.webp 143w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/infografia-enfermedades-raras-488x1024.webp 488w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/infografia-enfermedades-raras.webp 704w\" sizes=\"(max-width: 704px) 100vw, 704px\" \/><\/figure>\n<\/div>\n\n\n<h2 class=\"wp-block-heading\">Qu&rsquo;est-ce qu&rsquo;une maladie rare ?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Une maladie est consid\u00e9r\u00e9e comme rare lorsqu&rsquo;elle affecte un nombre limit\u00e9 de la population totale, d\u00e9fini en Europe comme <strong>moins d&rsquo;une personne sur 2 000 citoyens.&nbsp;<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Entre 6 et 8 % de la population mondiale<\/strong><\/li>\n\n\n\n<li>3 millions d&rsquo;Espagnols<\/li>\n\n\n\n<li>30 millones de europeos<\/li>\n\n\n\n<li>25 millones de norteamericanos<\/li>\n\n\n\n<li>42 millones de iberoamericanos<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">On estime qu&rsquo;<strong>il existe aujourd&rsquo;hui entre 5 000 et 7 000 maladies rares.<\/strong><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Caract\u00e9ristiques des maladies rares<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>D\u00e9but pr\u00e9coce dans la vie<\/strong> : 2 cas sur 3 apparaissent avant l&rsquo;\u00e2ge de deux ans.<\/li>\n\n\n\n<li><strong>Douleurs chroniques<\/strong> : 1 malade sur 5<\/li>\n\n\n\n<li><strong>Perte d&rsquo;autonomie<\/strong> : 1 cas sur 3<\/li>\n\n\n\n<li><strong>Pronostic vital engag\u00e9<\/strong> : aux maladies rares on peut attribuer un nombre \u00e9lev\u00e9 de d\u00e9c\u00e8s pr\u00e9coces.<\/li>\n<\/ul>\n\n\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div class=\"wp-block-image image-interface\">\n<figure class=\"aligncenter size-full\"><img decoding=\"async\" width=\"2000\" height=\"512\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02.webp\" alt=\"Infographie avec trois graphiques circulaires en bleu montrant la mortalit\u00e9 par \u00e2ge : 35 % avant un an, 10 % entre 1 et 5 ans et 12 % entre 5 et 15 ans.\" class=\"wp-image-34001\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02-300x77.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02-768x197.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02-1024x262.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02-1536x393.webp 1536w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Infografia-enfermedades-raras-02.webp 2000w\" sizes=\"(max-width: 2000px) 100vw, 2000px\" \/><figcaption class=\"wp-element-caption\">Pourcentages des maladies rares<\/figcaption><\/figure>\n<\/div>\n\n\n<h2 class=\"wp-block-heading\">Diagnostic des maladies rares<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Entre l&rsquo;apparition des premiers sympt\u00f4mes et l&rsquo;obtention d&rsquo;un diagnostic d&rsquo;une maladie rare, il s&rsquo;\u00e9coule en moyenne <strong>5 ans<\/strong>. Pendant ce d\u00e9lai de diagnostic :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>46,5 % ne re\u00e7oit aucun soutien ni traitement<\/li>\n\n\n\n<li>26,7 % re\u00e7oit un traitement inadapt\u00e9<\/li>\n\n\n\n<li>26,8 % : leur maladie s&rsquo;est aggrav\u00e9e<\/li>\n<\/ul>\n\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-columns br-0111 particle-bg p-5 has-primary-background-color has-background is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<h2 class=\"wp-block-heading has-white-color has-text-color\">Essayez NeuronUP 7 jours gratuitement<\/h2>\n\n\n\n<p class=\"has-white-color has-text-color wp-block-paragraph\">Vous pourrez travailler avec nos activit\u00e9s, concevoir des s\u00e9ances ou effectuer des r\u00e9habilitations \u00e0 distance<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-fe48e5de wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\" style=\"--button-background:var(--color-custom-1);--button-background-hover:#cc7e00;\"><a class=\"wp-block-button__link button   wp-element-button\" href=\"https:\/\/neuronup.com\/fr\/landing\/\">Commencez votre essai<\/a><\/div>\n\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Prise en charge sanitaire des maladies rares<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">46,6 % ne se d\u00e9clarent pas satisfaits des soins de sant\u00e9 re\u00e7us.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">D\u00e9placements \u00e0 la recherche d&rsquo;un diagnostic ou d&rsquo;un traitement<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">50 % des patients ont d\u00fb se d\u00e9placer ces derni\u00e8res ann\u00e9es en dehors de leur province en raison de la maladie.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">D\u00e9penses<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Chaque famille consacre en moyenne 350\u202f\u20ac aux d\u00e9penses.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Discrimination<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">75 % ont ressenti de la discrimination au moins une fois en raison de la maladie.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Handicap<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">70 % des personnes atteintes d&rsquo;une maladie rare poss\u00e8dent le certificat de handicap.<\/p>\n\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/07\/Infografia-Enfermedades-raras-ES.webp\" alt=\"En-t\u00eate &#039;Maladies rares&#039; avec une liste de cinq syndromes visibles et deux personnes dans un environnement m\u00e9dical.\" class=\"wp-image-43560\" style=\"width:600px\"\/><\/figure>\n<\/div>\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Si vous avez aim\u00e9 cet article sur les maladies rares, vous pourriez \u00e9galement \u00eatre int\u00e9ress\u00e9 par d&rsquo;autres articles similaires :<\/h3>\n\n<div class=\"mai-grid entries entries-grid has-boxed has-image-full\" style=\"--entry-title-font-size:var(--font-size-lg);--align-text:start;--entry-meta-text-align:start;\"><div class=\"entries-wrap has-columns\" style=\"--columns-xs:1 \/ 1;--columns-sm:1 \/ 1;--columns-md:1 \/ 3;--columns-lg:1 \/ 3;--flex-xs:0 0 var(--flex-basis);--flex-sm:0 0 var(--flex-basis);--flex-md:0 0 var(--flex-basis);--flex-lg:0 0 var(--flex-basis);--column-gap:var(--spacing-lg);--row-gap:var(--spacing-lg);--align-columns:start;\"><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-activites-de-la-vie-quotidienne tag-actividades-de-estimulacion-cognitiva tag-actividades-de-la-vida-diaria\" style=\"--entry-index:1;\" aria-label=\"Activit\u00e9s de la vie quotidienne (AVDs) : d\u00e9finition, classification et exercices\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-de-la-vie-quotidienne\/activites-de-la-vie-quotidienne-avq-definition-classification-et-exercices\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"225\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2022\/03\/Actividades-de-la-vida-diaria-AVDs-definicion-clasificacion-y-ejercicios.webp\" class=\"entry-image size-landscape-sm\" alt=\"Activit\u00e9s de la vie quotidienne (AVQ) d\u00e9finition, classification et exercices\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2022\/03\/Actividades-de-la-vida-diaria-AVDs-definicion-clasificacion-y-ejercicios-300x169.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2022\/03\/Actividades-de-la-vida-diaria-AVDs-definicion-clasificacion-y-ejercicios-768x432.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2022\/03\/Actividades-de-la-vida-diaria-AVDs-definicion-clasificacion-y-ejercicios-1024x576.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2022\/03\/Actividades-de-la-vida-diaria-AVDs-definicion-clasificacion-y-ejercicios.webp 1200w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-de-la-vie-quotidienne\/activites-de-la-vie-quotidienne-avq-definition-classification-et-exercices\/\" rel=\"bookmark\">Activit\u00e9s de la vie quotidienne (AVDs) : d\u00e9finition, classification et exercices<\/a><\/h3>\n<\/div><\/article><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-neurosciences tag-cerveau\" style=\"--entry-index:2;\" aria-label=\"Techniques d&rsquo;examen neurologique : concepts de base et applicabilit\u00e9 clinique\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/neurosciences\/techniques-dexamen-neurologique-concepts-de-base-et-applicabilite-clinique\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"267\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2023\/03\/Exploracion-neurologica.webp\" class=\"entry-image size-landscape-sm\" alt=\"Femme en blouse de laboratoire pla\u00e7ant un dispositif sur la t\u00eate d&#039;une personne, entour\u00e9e de c\u00e2bles et de moniteurs dans le laboratoire.\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2023\/03\/Exploracion-neurologica-300x200.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2023\/03\/Exploracion-neurologica-768x512.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2023\/03\/Exploracion-neurologica-1024x683.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2023\/03\/Exploracion-neurologica.webp 1200w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/neurosciences\/techniques-dexamen-neurologique-concepts-de-base-et-applicabilite-clinique\/\" rel=\"bookmark\">Techniques d&rsquo;examen neurologique : concepts de base et applicabilit\u00e9 clinique<\/a><\/h3>\n<\/div><\/article><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-activites-dattention tag-actividades-de-estimulacion-cognitiva tag-atencion\" style=\"--entry-index:3;\" aria-label=\"Cinq exercices pour travailler l&rsquo;attention\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-dattention\/lattention-cinq-exercices-pour-le-travailler-et-lameliorer\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"300\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/09\/Actividades-NeuronUP-Conquista-espacial-400x300.webp\" class=\"entry-image size-landscape-sm\" alt=\"Fond spatial avec un astronaute au centre, au-dessus d&#039;une plan\u00e8te verte, entour\u00e9 de plan\u00e8tes color\u00e9es, d\u2019ast\u00e9ro\u00efdes et d\u2019\u00e9toiles, avec un compteur d\u2019\u00e9l\u00e9ments.\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/09\/Actividades-NeuronUP-Conquista-espacial-400x300.webp 400w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/09\/Actividades-NeuronUP-Conquista-espacial-800x600.webp 800w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-dattention\/lattention-cinq-exercices-pour-le-travailler-et-lameliorer\/\" rel=\"bookmark\">Cinq exercices pour travailler l&rsquo;attention<\/a><\/h3>\n<\/div><\/article><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-lignes-de-recherche tag-investigacion tag-noticias-de-neuronup\" style=\"--entry-index:4;\" aria-label=\"Dispositifs num\u00e9riques comme outil th\u00e9rapeutique chez les enfants et les adolescents atteints d&rsquo;un handicap intellectuel\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/investigation\/lignes-de-recherche\/les-appareils-numeriques-comme-outil-therapeutique-pour-les-enfants-et-les-adolescents-presentant-des-deficiences-intellectuelles\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"267\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/12\/Intervenciones-conductuales-y-cognitivas-con-dispositivos-digitales-en-sujetos-con-discapacidad-intelectual-estudio-con-NeuronUP.webp\" class=\"entry-image size-landscape-sm\" alt=\"Un mineur interagissant avec un ordinateur portable dans un cadre th\u00e9rapeutique, avec la page NeuronUP et des logos institutionnels visibles.\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/12\/Intervenciones-conductuales-y-cognitivas-con-dispositivos-digitales-en-sujetos-con-discapacidad-intelectual-estudio-con-NeuronUP-300x200.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/12\/Intervenciones-conductuales-y-cognitivas-con-dispositivos-digitales-en-sujetos-con-discapacidad-intelectual-estudio-con-NeuronUP-768x512.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/12\/Intervenciones-conductuales-y-cognitivas-con-dispositivos-digitales-en-sujetos-con-discapacidad-intelectual-estudio-con-NeuronUP-1024x683.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/12\/Intervenciones-conductuales-y-cognitivas-con-dispositivos-digitales-en-sujetos-con-discapacidad-intelectual-estudio-con-NeuronUP.webp 1200w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/investigation\/lignes-de-recherche\/les-appareils-numeriques-comme-outil-therapeutique-pour-les-enfants-et-les-adolescents-presentant-des-deficiences-intellectuelles\/\" rel=\"bookmark\">Dispositifs num\u00e9riques comme outil th\u00e9rapeutique chez les enfants et les adolescents atteints d&rsquo;un handicap intellectuel<\/a><\/h3>\n<\/div><\/article><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-activites-des-fonctions-executives tag-actividades-de-estimulacion-cognitiva\" style=\"--entry-index:5;\" aria-label=\"Fiche de calcul mental : \u00abToucher la cible\u00bb\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-des-fonctions-executives\/fiche-de-calcul-mental\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"300\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Actividad-Acertar-en-la-diana.webp\" class=\"entry-image size-landscape-sm\" alt=\"Graphique circulaire \u00e0 huit segments avec des chiffres et un objectif de 72 ; deux cases pour additionner et un rouge qui marque une option invalide.\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Actividad-Acertar-en-la-diana-300x226.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Actividad-Acertar-en-la-diana-768x578.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Actividad-Acertar-en-la-diana-1024x771.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2024\/10\/Actividad-Acertar-en-la-diana.webp 1200w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-des-fonctions-executives\/fiche-de-calcul-mental\/\" rel=\"bookmark\">Fiche de calcul mental : \u00abToucher la cible\u00bb<\/a><\/h3>\n<\/div><\/article><article class=\"entry entry-grid is-column has-entry-link has-image has-image-first type-post category-activites-dattention tag-actividades-de-estimulacion-cognitiva tag-actividades-de-estimulacion-cognitiva-para-ninos tag-atencion tag-noticias-de-neuronup\" style=\"--entry-index:6;\" aria-label=\"Jeu d&rsquo;attention soutenue pour les enfants : Ballons color\u00e9s\" itemscope itemtype=\"https:\/\/schema.org\/CreativeWork\"><a class=\"entry-image-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-dattention\/jeu-dattention-soutenue-pour-enfants-ballons-colores\/\" tabindex=\"-1\" aria-hidden=\"true\"><img decoding=\"async\" width=\"400\" height=\"224\" src=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/04\/Globos-de-colores-original-.webp\" class=\"entry-image size-landscape-sm\" alt=\"Capture de l&#039;interface d&#039;un jeu d&#039;attention pour enfants : Ballons color\u00e9s, compteur 0\/3 et Terminer, sur fond bleu et blanc.\" srcset=\"https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/04\/Globos-de-colores-original--300x168.webp 300w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/04\/Globos-de-colores-original--768x429.webp 768w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/04\/Globos-de-colores-original--1024x573.webp 1024w, https:\/\/neuronup.com\/fr\/wp-content\/uploads\/2025\/04\/Globos-de-colores-original-.webp 1207w\" sizes=\"(max-width:599px) 599px, (min-width:600px) and (max-width: 799px) 799px, (min-width:800px) and (max-width: 999px) 333px, (min-width:1000px) 400px\" \/><\/a><div class=\"entry-wrap entry-wrap-grid\"><h3 class=\"entry-title\" itemprop=\"headline\"><a class=\"entry-title-link\" href=\"https:\/\/neuronup.com\/fr\/activites-de-neuro-reeducation\/activites-pour-les-fonctions-cognitives\/activites-dattention\/jeu-dattention-soutenue-pour-enfants-ballons-colores\/\" rel=\"bookmark\">Jeu d&rsquo;attention soutenue pour les enfants : Ballons color\u00e9s<\/a><\/h3>\n<\/div><\/article><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>Dans cet article, nous expliquons ce qu&rsquo;est une maladie rare, en mettant en avant sa d\u00e9finition, son impact mondial et les difficult\u00e9s auxquelles sont confront\u00e9s les patients. Nous d\u00e9taillons des statistiques sur sa pr\u00e9valence dans diff\u00e9rentes r\u00e9gions du monde et pr\u00e9sentons les principales caract\u00e9ristiques de ces maladies, telles que le diagnostic tardif, la douleur chronique &hellip;<\/p>\n","protected":false},"author":7,"featured_media":34014,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"categories":[604],"tags":[1129],"class_list":["type-post","category-maladies-rares","tag-enfermedades-raras","entry"],"acf":[],"_links":{"self":[{"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/posts\/33997","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/comments?post=33997"}],"version-history":[{"count":1,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/posts\/33997\/revisions"}],"predecessor-version":[{"id":900001635,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/posts\/33997\/revisions\/900001635"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/media\/34014"}],"wp:attachment":[{"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/media?parent=33997"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/categories?post=33997"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/neuronup.com\/fr\/wp-json\/wp\/v2\/tags?post=33997"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}